a day in the life of an unpaid carer and disabled rights activist

I'll get up at...

6.30

And then I...

take painkillers, go to the toilet, then make tea for both of us and a protein shake for my son, who needs help getting to work because of effects of a head injury and now back problems.

My day will consist of...

caring for my daughter who is disabled, as am I; Advocating for her rights and against those eroding them; coping with poverty currently at destitution level i.e juggling the impossible; assisting my son, including driving him to work and back, helping him with his memory problems; fighting for my own rights, which are being eroded. I've had to give up my academic career and job because of a) caring responsibilities and b) lack of accommodation of my own disablement. I'll be trying to cope with demands on me while in pain, disability, and in danger of falling and causing serious injury.

I'll look after...

my daughter; my son; try to look after myself. We had our dog as well who I cared for, but she died in the last year. I miss her terribly as we all do and she had our backs and cared for us right back. But there's this physical relief because she needed care too and now I don't need to do that. It's a cruel irony.

Other things I'll do in the day are...

try to read, crochet, pursue intellectual interests, in between my other unpaid work duties.

I'll go to bed after...

I've settled my daughter. I fall asleep during the evening on the sofa, and have to wake up to help her. It's particularly hard because by then I'm exhausted, but having to wake up means I then find it hard to sleep again, so read or crochet for a tiny respite, then got to bed about midnight.

Read more stories
Loading